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Congressman Jerry Nadler (NY-12) Joins Pediatric and Adult Hydrocephalus Caucus
The Hydrocephalus Association proudly announces that Congressman Jerry Nadler (NY-12) has joined the Congressional Pediatric and Adult Hydrocephalus Caucus.
With hydrocephalus impacting an estimated one million Americans, it's more important than ever that Congress work together to fund research into this life-threatening condition.” - Congressman Jerry NadlerWASHINGTON, DC, UNITED STATES, March 7, 2024 /EINPresswire / -- The Hydrocephalus Association proudly announces that Congressman Jerry Nadler (NY-12) has joined the Congressional Pediatric and Adult Hydrocephalus Caucus.
Congressman Nadler will play an integral role in advocating for increased awareness, funding, and support for pediatric and adult hydrocephalus patients. His commitment not only amplifies the voice of his constituents who have the condition but also results in heightened advocacy and representation for their needs.
"We're thrilled to welcome Congressman Nadler to the Pediatric and Adult Hydrocephalus Caucus," said Diana Gray, President and CEO, Hydrocephalus Association. "His dedication to representing the hydrocephalus community in NY-12 underscores the urgency for critical research, improved treatments, and enhanced care for those affected by this condition."
Hydrocephalus affects over one million Americans. The only known treatment for hydrocephalus is brain surgery. Anyone at any time can develop the condition from a traumatic brain injury, brain infection, tumor, or, for unknown reasons, as part of the aging process. One in 770 babies develop hydrocephalus each year. Over 800,000 seniors in the U.S. are estimated to have normal pressure hydrocephalus, though the majority are undiagnosed or misdiagnosed as having Alzheimer's or Parkinson's.
The most common surgical treatment for hydrocephalus is the placement of a shunt to drain excess cerebrospinal fluid from the brain, which has one of the highest failure rates of any medical device on the market. There are approximately 10,000 pediatric hospital admissions for shunt malfunctions each year. Hydrocephalus and a shunt can mean a lifetime of multiple brain surgeries. Dozens of brain surgeries are common and 100 or more is not unheard of.
“With hydrocephalus impacting an estimated 1 million Americans, it's more important than ever that Congress work together to fund research into this life-threatening condition,” said Representative Nadler.“I'm proud to announce that I am joining the Hydrocephalus Caucus to help shed light on this critical issue and uplift the voices of advocates fighting for access to treatment.”
The Caucus serves to inform the congressional community about the needs of those living with hydrocephalus, their families, and caregivers. This includes funding for research from the National Institutes of Health and Department of Defense and other key health policy priorities impacting the community such as Medicare and Medicaid access, special education, and rehabilitation services.
For further information on Congressman Nadler's commitment to the Pediatric and Adult Hydrocephalus Caucus, please contact Davis Kaderli at 240-483-4884 or ....
About the Hydrocephalus Association:
Founded in 1983 by parents of children with hydrocephalus, the Hydrocephalus Association has grown to become the nation's largest and most widely respected organization dedicated to hydrocephalus. The Hydrocephalus Association began funding research in 2009. Since then, HA has committed over $13 million to research, making it the largest nonprofit, non-governmental funder of hydrocephalus research in the U.S. For more information, visit .
Davis Kaderli
Hydrocephalus Association
+1 240-483-4884
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