(MENAFN- PRovoke) The path from adolescence to adulthood is never simple, and for people living with rare diseases, it can be particularly complex. A new report from Golin explores this critical transition, uncovering differences between how patients and caregivers perceive readiness for independence and adulthood.

The research, documented in the“Raising Rare Report,” highlights how those perspectives diverge when it comes to managing healthcare, living independently, and daily responsibilities. Many patients feel prepared to take on more control of their lives, while their caregivers often see the picture differently, raising questions about whether current systems and resources adequately support this shift.

In this episode, managing director Jaimee Reggio, who oversees US healthcare for Golin and Virgo Health, joins PRovoke Media's Diana Marszalek to unpack the study's findings and what they mean for communicators, healthcare brands, and advocacy groups. Together, they discuss how understanding these differing viewpoints can help ensure that the voices of patients and caregivers are both heard and that support for rare disease communities evolves alongside them.

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