Families Find Strength, Challenge Stigma On World Down Syndrome Day

(MENAFN- Jordan News Agency)

Amman, March 20 (Petra) -- "Initially, I felt shock and sadness upon learning my daughter had Down syndrome," recalls Samah, a mother in Amman. "It was my first child, and I was overwhelmed. But now, I regret every moment of sorrow, realizing she is the greatest blessing in my life."
Samah's story, shared on the eve of World Down Syndrome Day, highlights the emotional journey many families face.
She emphasizes the importance of early intervention and support, crediting medical professionals for guiding her through her daughter's specific health needs. "It's crucial to interact with them positively, encourage their communication, and provide a nurturing environment," she says.
However, challenges persist. Samah's husband left her after their daughter's diagnosis, underscoring the need for greater societal understanding and support. She calls for increased awareness through educational sessions, community integration, and both moral and financial support for families.
World Down Syndrome Day, observed annually on March 21st, was designated by the United Nations in 2011 to raise public awareness and advocate for the rights and inclusion of individuals with Down syndrome.
According to UN studies, Down syndrome, a genetic disorder affecting approximately 1 in 3,000 to 5,000 births, can be significantly managed with early intervention, regular medical checkups, and tailored support in areas like physical therapy, counseling, and special education.
Parental care, community support systems, and specialized schools play a vital role in enabling individuals with Down syndrome to lead fulfilling lives and participate actively in society.
Down syndrome, caused by an extra copy of chromosome 21, presents with developmental delays, learning difficulties, and potential health complications.
While there is no cure, various therapies, including medical, psychological, physical, occupational, and educational interventions, can significantly improve quality of life.
Dr. Feryal Shneikat, a special education specialist, emphasizes the importance of World Down Syndrome Day in disseminating accurate information, celebrating achievements, and advocating for the rights of individuals with Down syndrome.
"They face health challenges, including congenital heart defects, hearing and speech impairments, and learning disabilities," she notes, highlighting the need for specialized support and inclusive education.
Jordan's Ministry of Education is committed to inclusive education, promoting social skills, academic achievement, and independence for students with disabilities, including those with Down syndrome.
Awa'tif Abu Al-Rub, founder of Al-Yasmeen Association for Children with Down Syndrome, the first parent-led organization in Jordan dedicated to Down syndrome, highlights the association's efforts in raising awareness and providing support.
"We collaborate with various ministries and organizations, and we've established the first folk art group in the Arab world composed entirely of individuals with Down syndrome," she says.
The association's mission is to advance the well-being of individuals with Down syndrome, dispel misconceptions, and promote their inclusion in all aspects of society.

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